Your Diabetes May Vary

Your Diabetes May VaryBennet Dunlap of Your Diabetes May Vary
Son and Daughter; Type 1 Diabetes

“YDMV and theBetesNOW are the miscellaneous ramblings of a Type 1 Diabetic family. YDMV from a parents perspective and theBetesNOW videos by and for teens.”

YDMVtheBetesNOW

As a family with two Type 1 Diabetic teens, we try to pursue life, liberty and happiness & bring diabetes along for the ride. More often than not that involves managing less than perfect blood sugars in less than perfect situations and keeping those variances from preventing what we are pursuing in the first place.

the Betes NOW

This is Caleb…

Lorraine SistoLorraine Sisto of This is Caleb…
Son; Type 1 Diabetes, January 2007

“Lorraine is the Mother of three children, the second of which, Caleb, was diagnosed with Type 1 Diabetes at the age of three.”

This is Caleb…

Lorraine Sisto is the Mother of three children, the second of which is Caleb. Caleb has been living with Type 1 Diabetes since the age of three. Lorraine shares the stories of his life to increase awareness of the disease and to advocate for, support and be supported by others who are affected by it.

This is Caleb

The Princess and the Pump

Hallie & Avery AddingtonHallie Addington of The Princess and the Pump
Daughter; Type 1 Diabetes, April 2009

“I’m not a doctor. I just play one in real life. The Princess and The Pump is the story of how our family lives and loves with Type 1 Diabetes.”

The Princess and the Pump

On April 27, 2009, my then 3 year old daughter was diagnosed with Type 1 Diabetes. And our lives changed forever. The Princess and The Pump is our story of how we are LIVING with Diabetes. I share all the emotions of being a parent AND a pancreas for our child. I share what works for us and what does not.  And I share my newest passion:  Advocating and educating about Type 1 Diabetes.

The Princess and the Pump

Our Diabetic Life

Meri SchuhmacherMeri Schuhmacher of Our Diabetic Life
Three Sons; Type 1 Diabetes, 2006 – 2009 – 2010

“Meri is mom to 4 boys, 3 who have Type 1 Diabetes. Muddling her way through with humor and hope, she wishes every family to know they are not alone.”

Our Diabetic Life

My husband and I have four boys, three who have Type 1 Diabetes. Our 13 year old son was diagnosed at 8 months old. Our 9 year old son was diagnosed at 5 years old, and our 7 year old son was diagnosed at 2 years old. I began my blog, Our Diabetic Life, about two years ago. It was my field of dreams…I truly believed if I could build it, they would come. Since then I have met hundreds of Mothers just like me, and many adults with Diabetes who inspire me every day.  The DOC has brought me joy beyond measure. The power of “same” is an amazing thing. Knowing our family is not alone in this battle has changed our life for the better. I hate to think of the families that battle alone. We are an army that is stronger together.

Our Diabetic Life

D-Mom Blog

Leighann CalentineLeighann Calentine of D-Mom Blog
Daughter; Type 1 Diabetes, May 2008

“The sweet life with a diabetic child. Hear our story of counting carbs, carrying juice boxes, and navigating school & sports with our active daughter.”

D-Mom Blog

D-Mom Blog is a website for parents raising children with Type 1 Diabetes. We count carbs, we carry juice boxes, and we are always on call, as other families affected by this condition. I share our story as my husband and I manage our daughter’s Diabetes, first with injections and now with an insulin pump, and tackle sending her to public school. I offer resources valuable to parents advocating for their children.

D-Mom Blog

Diabetes Dad

Tom KarlyaTom Karlya of Diabetes Dad
Son; Type 1 Diabetes, 2009
Daughter; Type 1 Diabetes, 1992

“VP of the Diabetes Research Institute Foundation, Diabetes Dad writes about living as a parent in a world of Diabetes and his unyielding pursuit of a cure.”

Diabetes Dad

Tom Karla has been active in Diabetes causes since his daughter, Kaitlyn, was diagnosed in 1992 at the age of two.  His son Rob was also diagnosed in March of 2009 at the age of thirteen. Tom has lectured across the country and chaired many panels about being a Diabetes Dad, his pen name used virtually everywhere. Over the years he has been featured or quoted in numerous newspapers such as Newsday, USA Today, and The Los Angeles Times, to name a few. Tom has also been published in periodicals such as Newsday, Time, and Parents Guide Weekly.

As a Diabetes Ddvocate, Tom has been introduced to the New York State Capitol, testified in Washington, D.C., appeared at Diabetes-related events at the United Nations, and has served as a panelist or keynote speaker at numerous Diabetes events.

He has written and/or produced public service announcements for Diabetes causes featuring celebrities such as Ray Romano, Sugar Ray Leonard, Doris Roberts, Nicole Johnson (Miss America 1999-co-host dLifeTV), Sandra Oh, Patti LaBelle, Peter Boyle, Brett Michaels, and Jim Turner. Tom was awarded the prestigious Jeff Hitchcock Distinguish Service Award from The Children with Diabetes in 2008, Man of the Year by The LI Advertising Club, and Diabetes Advocate of the Year by the American Association of Diabetes Educators.

As Producer of dLifeTV he was nominated for an Emmy Award, awarded 13 Telly (former Cable Ace) Awards, 4 nominations and a win for The Best in Medical Media; The FREDDIE Award. He also received numerous commendations, including congratulations from the president of the United States for his work in the Katrina efforts where he was instrumental in organizing relief efforts to over 10,000 people with Diabetes. He was the recipient of The George Estabrook Award from his Alma Mater of Hofstra University for his work in Diabetes and television.

As an actor, for 12 years, he starred in the New York City Production of Tony ‘N Tina’s Wedding, working with the original NY Company and also at The Kennedy Center for the Performing Arts, Washington, D.C., in Summer of the 17th Doll, and his film, lbs., was seen at the prestigious Sundance Film Festival. Tom has also appeared in Unsolved Mysteries, Spin City, The Cosby Show, NYPD Blue, Law and Order, America’s Most Wanted, Entertainment Tonight, Access Hollywood, and other shows as well as numerous commercials.

Tom is presently the Vice President of the Diabetes Research Institute Foundation (www.DiabetesResearch.org) in Florida. He resides on Long Island.

 

Diabetes Advocacy

Barb WagstaffBarb Wagstaff of Diabetes Advocacy
Son; Type 1 Diabetes, March 2000

“I am a mother, a pancreas, and an advocate trying to make a difference in the lives of people with Diabetes and their families.”

Diabetes Advocacy

A parent of a child with Diabetes who decided to create her own unique Canadian Diabetes website about a year after the diagnosis of her son. This creation led to the site being the hub of various advocacy initiatives including change in the federal tax law to make it easier for people with Diabetes to claim the disability tax credit.  The site has also served as a place to unite people and create change in various provincial health programs to offer expanded support for insulin pumps and Diabetes supplies.  The site also provides detailed information on what is new in technology and research while keeping parents up to date on the rights of their children with Diabetes in Canadian schools.

The Diabetes Advocacy website over the years has also expanded to include a blog which highlights the ups and downs of living with a child with Diabetes.

Diabetes Advocacy

Candy Hearts

Wendy RoseWendy K. Rose, R.N. of Candy Hearts
Daughter; Type 1 Diabetes, July 2005 – Celiac 2008

“The story of one family’s journey with Type 1 Diabetes and Celiac. It’s a sweet adventure full of gluten-free goodies!”

Candy Hearts

Wendy’s oldest daughter was diagnosed with Type 1 Diabetes in 2005, at the age of twenty four months and Celiac Disease in 2008, at the age of five years. Wendy herself was diagnosed with Celiac Disease in 2009.  Balancing the demands of blood sugar management while maintaining a gluten-free lifestyle; on top of her role as wife and mother; in addition to maintaining a career as a R.N. can be a challenge at times.  She documents her family’s journey at www.CandyHeartsBlog.com.

Candy Hearts