This hub will evolve over time as a place where you can learn about and engage with important diabetes advocacy opportunities matching your interests, so that the patient voice is heard wherever important policy decisions affecting our lives are made.
To get started, we invite you to take our Diabetes Advocacy Survey, speak up for coordinated diabetes policy (the first of many issues to be included in the hub), and follow other leaders in diabetes advocacy, so we may strengthen our collective force in support of diabetes advocacy.
Last, on this page you will have access to the slides and video archive from the Diabetes Advocates MasterLab, hosted in Orlando, FL (July 2, 2014) by Diabetes Hands Foundation in collaboration with Children with Diabetes (CWD).
Ask your representatives to support the National Diabetes Clinical Care Commission Act (House Resolution 1074 or the Senate bill 539). Both bills call for a commission of health professionals, agencies, and patients to coordinate disparate federal actions to help people living with diabetes. If your representative or senator has already cosponsored the bill, please thank them for supporting legislation that helps people with diabetes.
When you hear back from your representative or Senators, please email us at firstname.lastname@example.org, so we may learn about your experience.
|Number of Co-Sponsors||
|Current Co-sponsors||House Co-sponsors||Senate Co-sponsors|
(Updated: July 29, 2014 – House support up from 153; Senate support up from 18)
(Updated: July 24, 2014 – House support up from 152; Senate support up from 16)
(Updated: July 22, 2014 – House support up from 141; Senate support up from 15)
Description: This legislation would establish within Department of Health and Human Services (HHS) a National Diabetes Clinical Care Commission to evaluate and make recommendations regarding better coordination and leveraging of federal programs that relate in any way to supporting appropriate clinical care for people with pre-diabetes and diabetes.
Why it Matters: Over three dozen Federal Agencies are involved with diabetes policy. Their collective focus needs to be patient success. This Clinical Care Commission would help to prevent unintended consequences for patients that often result from lack of inter-agency coordination on policy issues.
What it Does: This bill would create a commission comprised of diabetes experts, primary care physicians, other health care professionals, patients, and representatives from the federal agencies most involved in diabetes research, prevention and care. The goal of the commission is to leverage federal investments in diabetes more cost effectively, in order to help improve the coordination and clinical care outcomes for people with diabetes and pre-diabetes.
How to help: Join the American Association of Clinical Endocrinologists call for legislation to create a National Diabetes Clinical Care Commission. Send their letter to your representative/senators or adapt it and send your own version.
Additional references: letters from ADA, AADE, JDRF and others in support of the bill, Infographic (The Gateway Disease NDCCC).
We don’t want to reinvent the wheel. There is already outstanding leadership on many diabetes-related issues; for example AACE’s work on the National Diabetes Clinical Care Commission Act. If you have not done so already, we encourage you to join these efforts. Adding your voice can amplify these efforts to help people with diabetes.
Slides from MasterLab (July 2, 2014)
Video footage from MasterLab (July 2, 2014)
You can watch a playlist with the whole day’s worth of footage below, allowing you to skip presentations by clicking on the “NEXT” button in the video player.
You can also watch individual presentations:
- Opening remarks – Manny Hernandez (DHF)
- Keynote: Today’s Diabetes Advocacy Environment – Paul Madden
- Regulatory interest in public participation – Stayce Beck (FDA)
- Roundtable: “What I wish patient advocacy looked like” Mod. Mike Swearingen
- What has been accomplished by other patients (and how) – Michael Mangianello (HIV/AIDS activist,HCM Strategists)
- How diabetes can do it too: a roadmap for diabetes advocacy – Manny Hernandez (DHF), Bennet Dunlap (StripSafely)
- Understanding Diabetes: Knowledge & Solutions – Kelly Close, Adam Brown (Close Concerns, diaTribe)
- Getting the attention of decision makers – Rebecca Killion (PWD, Patient Representative at FDA)
- Mobilizing the diabetes community – Kerri Sparling (SixUntilMe)
- Making a successful ask, Role Plays – David Lee Strasberg (PWD)
- Wrap up and calls to action – Manny Hernandez (DHF)
We invite you to share these videos with others, so that we may spread the word far and wide.
Additional resources discussed during MasterLab
- Back to Basics and “How To Survive a Plague” – HIV/AIDS ADVOCACY AS A MODEL FOR CATALYZING CHANGE
- Diabetes Advocates webinar with HIV/AIDS Activist Peter Staley
- Easily track the activities of the United States Congress: through GovTrack.US, or Congress app.
- Subscribe to diaTribe, Research & Product News for People with Diabetes
Diabetes Advocates MasterLab was made possible thanks to generous contributions made by the following organizations.