Join experienced advocates, industry experts and learn to be a champion for effective diabetes policy.
- Patient advocates from other diseases
- Government and Regulatory Affairs representatives from device and pharmaceutical companies
- Other experts.
Understand the role of patients, empower diabetes advocates:
- Policy, regulatory issues
- What advocacy looks like now and where we can improve.
- How can patients be effective in the policy landscape?
An Advocacy Model: borrowing successful practices from the HIV/AIDS book.
Discuss aDiabetes Advocacy roadmap
Hands-onpractice and role playing.
July 2, 2014
Orlando World Center Marriott
Diabetes Hands Foundation offers this MasterLab in collaboration withChildren with Diabetes(CWD). Registered participants in CWDs Friends for Life conference are welcome to join the MasterLab as part of their FFL experience at no additional cost:separate registrationfor the MasterLab is required.
Stand alone registration for the MasterLab is $50 per person.
Free* If youve registered for Friends For Life
*emailMike@diabeteshf.orgfor a promo code to use for registration for the MasterLab.
|7:00 AM||7:55 AM||Breakfast|
|8:00 AM||8:10 AM||Opening remarks||Manny Hernandez (DHF)|
|8:15 AM||8:45 AM||Keynote: Todays Diabetes Advocacy Environment||Paul Madden|
|8:50 AM||9:20 AM||Regulatory interest in public participation||Stayce Beck (FDA)|
|9:25 AM||10:25 AM||Roundtable: What I wish patient advocacy looked like||Moderator: Mike Swearingen
|10:25 AM||10:50 AM||Networking Break|
|10:55 AM||11:15 AM||What has been accomplished by other patients (and how)||Mike Mangianello (HIV/AIDS activist,
|11:30 AM||12:00 PM||How diabetes can do it too: a roadmap for diabetes advocacy||Manny Hernandez (DHF)
Bennet Dunlap (StripSafely)
|12:00 PM||12:55 PM||Lunch||Facilitators at tables: talk with your table about what you feel called to help with AND write it down.|
|1:00 PM||1:45 PM||Understanding Diabetes: Knowledge & Solutions||Kelly Close, Adam Brown (Close Concerns, diaTribe)|
|1:50 PM||2:35 PM||Getting the attention of decision makers||Rebecca Killion (PWD),
Kim Davis (J&J)
|2:40 PM||2:55 PM||Networking Break|
|3:00 PM||3:35 PM||Mobilizing the diabetes community||Kerri Sparling (SixUntilMe)|
|3:35 PM||4:10 PM||Making a successful ask||David Lee Strasberg (PWD)|
|4:15 PM||4:55 PM||Role Plays||Leader: David Lee Strassberg
Moira McCarthy, Scott Johnson, Bennet Dunlap, Manny Hernandez, others facilitating around the room
|4:55 PM||5:00 PM||Wrap up and calls to action||Manny|