Supporting ADA’s #MakeInsulinAffordable Campaign

Yesterday, the American Diabetes Association (ADA) launched a new website for their Make Insulin Affordable campaign. With an entire website devoted to this timely issue in the United States, visitors can learn about the issue, read the ADA’s proposed next steps, sign a petition in support, and share a story about their difficulty affording insulin.   

We at Diabetes Hands Foundation and Diabetes Advocates support ADA’s asks to:

  • Start with transparency from all in the insulin supply chain;
  • Use that information to work towards affordability and access so all those who need insulin can afford it; and
  • Have Congress investigate the cause of the price increases, and take action to ensure access.

As we’ve discussed in previous blog posts, the health care system is extremely complex and flawed in the United States. We want to see transparency from all parties involved in the supply chain of insulin, and continue working to make sure the voice(s) of our community are heard by stakeholders in the private sector and public policy leaders. We believe in a future where every person touched by diabetes should have affordable access to effective therapies, anywhere in the world.

We are thankful and encouraged by the steps of Lilly Diabetes through their recently announced program with Blink Health where eligible people can realize a discount on their insulin purchases, and Novo Nordisk who has made a commitment to control future price hikes. These are positive steps and were taken in response to patient needs. However, more needs to be done, including a rigorous review of the other elements in the supply chain where transparency would be a useful element in this discussion.

We look forward to engaging in policy roundtables in the coming months that will explore sustainable solutions for providing life-saving medications for PWDs, and affordable care in general. Please get involved by sharing any support or personal stories through ADA’s website, to ensure our community’s voice is loud, and our needs are clear.  

7 thoughts on “Supporting ADA’s #MakeInsulinAffordable Campaign

  1. Melanie Callahan on said:

    The ‘doughnut’ hole left me unable to afford Lantus – the only long-acting insulin that I’ve found effective (Levemir for me does NOT WORK) from November 2016 through the end of the year. My numbers without it range from 250 to 500+, and now in 2017 I’m responsible for the deductible and the doughnut hole FARCE will start all over again in April. I don’t know who’s getting rich off people like me, but they ought to be ashamed of themselves. This type of situation is UNACCEPTABLE.

    • Mary burney on said:

      There is no reason for it to be so much , they know you have to have it or you die so they charge what they want! Not fare!!

  2. Betty Richardson on said:

    deductibles make it almost impossible to afford insulin at the first of the year AND when you fall into the “donut hole” the disease itself is hard enough to live with but when you must struggle to pay for your drugs also that makes it so much harder…. Not diabetic by choice!

  3. Lisa Ward on said:

    Even with paying high premiums with our BC/BS heath insurance, my co pay for Lantus skyrocketed from 80.00 a month to more than 500.00. For most of us, sadly, it means choosing between a medication or a mortgage. I had to switch to a lesser brand insulin that Is not working. The exhorbanant costs of insulin and insurance companies failing to put Insulin in a better paying tier will become a death sentence for many of us. There is a big possibility that many of us will not be able to pay for insulin much longer. Why does insurance think it is a better idea to pay for amputations, heart disease, kidney function, blindness or any other terrible complication a diabetic will surely face in the future than pay for insulin TODAY when we need it to live.

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